Blar i Bergen Open Research Archive på forfatter "Sigurdardottir, Katrin Rut"
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Assessing quality of care for the dying from the bereaved relatives' perspective: Using pre-testing survey methods across seven countries to develop an international outcome measure
Mayland, Catriona Rachel; Gerlach, Christina; Sigurdardottir, Katrin Rut; Hansen, Marit Irene Tuen; Leppert, Wojciech; Stachowiak, Andrzej; Krajewska, Maria; Garcia-Yanneo, Eduardo; Tripodoro, Vilma Adriana; Goldraij, Gabriel; Weber, Martin; Zambon, Lair; Passarini, Juliana Nalin; Saad, Ivete Bredda; Ellershaw, John; Haugen, Dagny Faksvåg (Peer reviewed; Journal article, 2019)Background: The provision of care for dying cancer patients varies on a global basis. In order to improve care, we need to be able to evaluate the current level of care. One method of assessment is to use the views from ... -
Development of an international Core Outcome Set (COS) for best care for the dying person: study protocol
Zambrano, Sofia C; Haugen, Dagny Faksvåg; van der Heide, Agnes; Tripodoro, Vilma Adriana; Ellershaw, John; Fürst, Carl Johan; Voltz, Raymond; Mason, Stephen; Daud, Maria L; De Simone, Gustavo; Halfdanardottir, Svandis; Sigurdardottir, Valgerdur; Johnson, Jeremy; Allan, Simon; Hafeez, Haroon; Simoes, Catarina; Sigurdardottir, Katrin Rut; Rasmussen, Birgit H.; Williamson, Paula; Eychmüller, Steffen (Journal article; Peer reviewed, 2020-11-30)Background: In contrast to typical measures employed to assess outcomes in healthcare such as mortality or recovery rates, it is difficult to define which specific outcomes of care are the most important in caring for dying ... -
Factors affecting quality of end-of-life hospital care - a qualitative analysis of free text comments from the i-CODE survey in Norway
Hansen, Marit Irene Tuen; Haugen, Dagny Faksvåg; Sigurdardottir, Katrin Rut; Kvikstad, Anne; Mayland, Catriona Rachel; Schaufel, Margrethe Aase (Journal article; Peer reviewed, 2020)Background The ERANet-LAC CODE (Care Of the Dying Evaluation) international survey assessed quality of care for dying cancer patients in seven countries, by use of the i-CODE questionnaire completed by bereaved relatives. ... -
Feasibility and acceptability of introducing advance care planning on a thoracic medicine inpatient ward: an exploratory mixed method study
Hjorth, Nina Elisabeth; Schaufel, Margrethe Aase; Sigurdardottir, Katrin Rut; Haugen, Dagny Faksvåg (Journal article; Peer reviewed, 2020)Background and aims: Advance care planning (ACP) is communication about wishes and preferences for end-of-life care. ACP is not routinely used in any Norwegian hospitals. We performed a pilot study (2014–2017) introducing ... -
Good Quality Care for Cancer Patients Dying in Hospitals, but Information Needs Unmet: Bereaved Relatives’ Survey within Seven Countries
Haugen, Dagny Renata Faksvåg; Hufthammer, Karl Ove; Gerlach, Christina; Sigurdardottir, Katrin Rut; Hansen, Marit Irene Tuen; Ting, Grace; Tripodoro, Vilma Adriana; Goldraij, Gabriel; Yanneo, Eduardo Garcia; Leppert, Wojciech; Wolszczak, Katarzyna; Zambon, Lair; Passarini, Juliana Nalin; Saad, Ivete Bredda; Weber, Martin; Ellershaw, John; Mayland, Catriona Rachel (Journal article; Peer reviewed, 2021)Background Recognized disparities in quality of end-of-life care exist. Our aim was to assess the quality of care for patients dying from cancer, as perceived by bereaved relatives, within hospitals in seven European and ... -
Hospital care for the dying patient with cancer: does an advance care planning invitation influence bereaved relatives' experiences? A two country survey
Hjorth, Nina Elisabeth; Hufthammer, Karl Ove; Sigurdardottir, Katrin Rut; Tripodoro, Vilma Adriana; Goldraij, Gabriel; Kvikstad, Anne; Haugen, Dagny Renata Faksvåg (Journal article; Peer reviewed, 2021)Objectives: Advance care planning (ACP) is not systematically performed in Argentina or Norway. We used the post-bereavement survey of the ERANet-LAC International Care Of the Dying Evaluation (CODE) project (2017–2020) ... -
Live well, die well - an international cohort study on experiences, concerns and preferences of patients in the last phase of life: the research protocol of the iLIVE study
Yildiz, Berivan; Allan, Simon; Bakan, Misa; Barnestein-Fonseca, Pilar; Berger, Michael; Boughey, Mark; Christen, Andri; De Simone, Gustavo G; Egloff, Martina; Ellershaw, John; Elsten, Eline E. C. M.; Eychmüller, Steffen; Fischer, Claudia; Fürst, Carl Johan; Geijteman, Eric C. T.; Goldraij, Gabriel; Goossensen, Anne; Halfdanardottir, Svandis Iris; Haugen, Dagny Renata Faksvåg; Hedman, Christel; Hoppe, Tanja; Hughes, Rosemary; Iversen, Grethe Skorpen; Joshi, Melanie; Kodba-Ceh, Hana; Korfage, Ida J; Lunder, Urska; Lüthi, Nora; Martín-Roselló, Maria Luisa; Mason, Stephen; Mcglinchey, Tamsin; Montilla, Silvi; Rasmussen, Birgit H; Ruiz-Torreras, Inmaculada; Schelin, Maria E. C.; Sigurdardottir, Katrin Rut; Sigurdardottir, Valgerdur; Simon, Judith; Smeding, Ruthmarijke; Solvåg, Kjersti; Strupp, Julia; Tripodoro, Vilma; Van Der Kuy, Hugo M; Van Der Rijt, Carin C. D.; Van Zuylen, Lia; Veloso, Verónica I; Vibora-Martin, Eva; Voltz, Raymond; Zambrano, Sofia C; Van Der Heide, Agnes (Journal article; Peer reviewed, 2022)Introduction Adequately addressing the needs of patients at the end of life and their relatives is pivotal in preventing unnecessary suffering and optimising their quality of life. The purpose of the iLIVE study is to ... -
Pilot testing of the first version of the European Association for Palliative Care basic dataset: A mixed methods study
Sigurdardottir, Katrin Rut; Hjermstad, Marianne Jensen; Filbet, Marilene; Tricou, Colombe; McQuillan, Regina; Costantini, Massimo; Autelitano, Cristina; Bennett, Michael I.; Haugen, Dagny Faksvåg (Peer reviewed; Journal article, 2019)Background: Inadequate description of palliative care cancer patients in research studies often leads to results having limited generalizability. To standardize the description of the sample, the European Association for ...